tag:blogger.com,1999:blog-3723124266752750306.post4583633535788220311..comments2023-07-26T03:02:44.055-07:00Comments on ANWA Founder & Friends: LearningMarsha Wardhttp://www.blogger.com/profile/15389060049107102815noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-3723124266752750306.post-12768499067140639252009-01-11T16:32:00.000-07:002009-01-11T16:32:00.000-07:00Hi I have cone distrophy and I recently found out ...Hi I have cone distrophy and I recently found out that I would be able to at least take a drivers test, I have had vision problems since i was about 2 but I'm 14 and i just found out this year that I have cone distrophy.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3723124266752750306.post-38428245586225153462008-04-03T03:55:00.000-07:002008-04-03T03:55:00.000-07:00Losing one's sight is a disappointing experience, ...Losing one's sight is a disappointing experience, even when it's only partially so. But I've heard that deafness is much harder. I wonder how Helen Keller could have had any happiness when she completely <BR/>lost both.<BR/><BR/>I remember the 'good old days' when I had 20/20 vision and could 'hear a pin drop'. Now I can't read even the large traffic signs until I'm almost right on them, and faces a few rows back in church lose their individuality. My eye doctor says glasses won't help. People, especially teenagers, can carry on conversations right by me, and I don't eavesdrop because I can't discern any meaning in their mumbles, even when my hearing aids happen to be turned up high. I only guess at the content of responses in Sunday School or Relief Society. I do have a thingamajig that pipes the sound from the microphone straight into my ears, and that helps a lot. In conversation, if people want me to understand, they speak directly and clearly to me. Otherwise, we ignore each other.<BR/><BR/>Has the quality of my life completely disintegrated? Hardly. It's just different. My disfunctions are even interesting. I'm still happy.<BR/><BR/>Oh, and I discovered that some food, like blueberries, for instance, and food supplements especially for eyes really do help my sight. It surprised me. When I take them, I I can (especially early in the day when my eyes are rested) read even fine print without magnifiers. <BR/><BR/>My sister-in-law who is an herbalist, says that sometimes when a baby is born the neck bones get out of line. Doctors don't check for this, but it can pinch the 'pipeline' to the eyes or ears, etc. Usually it doesn't show up for years, but chiropractors have been known to help immensely. <BR/><BR/>I've also discovered that sometimes it's those with the most to overcome that are the happiest. That's probably because happiness is a matter of choice, not circumstance.Anna Arnetthttps://www.blogger.com/profile/09882034663742937010noreply@blogger.comtag:blogger.com,1999:blog-3723124266752750306.post-49572545711385805112008-03-31T18:16:00.000-07:002008-03-31T18:16:00.000-07:00Your Thomas may not see in vibrant colors, but his...Your Thomas may not see in vibrant colors, but his smile is vibrantly hued. What a doll! <BR/><BR/>I think the best lessons a dearly bought, and your family will learn things through this experience that we will never know. How wonderful that you have the gift of writing to teach us second hand. You've already begun with this posting. Well done.Liz Adairhttps://www.blogger.com/profile/08815648250166705199noreply@blogger.comtag:blogger.com,1999:blog-3723124266752750306.post-30768429622561392282008-03-31T05:44:00.000-07:002008-03-31T05:44:00.000-07:00Yes, miracles are pesky things at times since we c...Yes, miracles are pesky things at times since we cannot always understand why a cure isn't the best miracle. Living with something yourself is much eaiser than seeing a child struggle. But don't lose hope. The cure miracle could still be yours to cherish.Terri Wagnerhttps://www.blogger.com/profile/06905158157291602809noreply@blogger.comtag:blogger.com,1999:blog-3723124266752750306.post-64147614160648539652008-03-28T17:15:00.000-07:002008-03-28T17:15:00.000-07:00Great insight, Kristine. I love the analogy compar...Great insight, Kristine. I love the analogy comparing physical sight and spiritual sight. Just as you feel blessed to have your son, your son is blessed to have such caring and devoted parents. Thanks for the lesson on Cone Dystrophy. I never learn anything but that I find I am given the opportunity to use it. God bless you dear Sister.Kari Pikehttps://www.blogger.com/profile/13855609339118198399noreply@blogger.comtag:blogger.com,1999:blog-3723124266752750306.post-63097030161369770372008-03-28T17:01:00.000-07:002008-03-28T17:01:00.000-07:00What a heart-wrenching thing for a parent and chil...What a heart-wrenching thing for a parent and child - and what a wonderful way to see your way through. I love how you realize that a miracle may mean having the best people come into your son' life. Thank you for this tender look into your family.Rene Allenhttps://www.blogger.com/profile/12403830772764710785noreply@blogger.com